About Us

Light Up Epilepsy is a dedicated nonprofit organization that champions epilepsy awareness and combats stigma worldwide. Through powerful storytelling, community engagement, and strategic partnerships, the organization empowers individuals living with epilepsy to live fuller, more inclusive lives. By spotlighting the achievements and challenges of people with epilepsy, Light Up Epilepsy creates a supportive network that fosters hope, knowledge, and resilience. The organization works tirelessly to educate the public, provide resources for patients and caregivers, and advocate for better policies and treatments.
Light Up Epilepsy’s mission is rooted in the belief that every person affected by epilepsy deserves respect, understanding, and equal opportunity. With a focus on inclusivity, the organization promotes a culture of acceptance, dismantles misconceptions, and celebrates the diverse contributions of those with epilepsy.
Through collaborative efforts with medical professionals, researchers, and community leaders, Light Up Epilepsy ensures that the voices of patients are amplified in every conversation about seizure disorders. By creating an environment where knowledge is freely shared and stigma is actively challenged, the organization cultivates a brighter future where epilepsy is no longer a barrier but a shared human experience.
Whether through educational campaigns, support networks, or artistic endeavors, Light Up Epilepsy is lighting the way toward a more informed, compassionate, and equitable world for all those living with epilepsy.
The organization’s unwavering commitment to education, advocacy, and empowerment continues to inspire and transform lives, fostering a sense of belonging and hope in communities around the globe.
Since its founding, Light Up Epilepsy has expanded its reach beyond national borders, collaborating with international partners to address disparities in epilepsy care. By leveraging data‑driven insights and patient‑centered research, the organization informs policy changes that improve access to diagnostics, medications, and supportive services. Its flagship initiative, ‘Under the Lights,’ has reached millions, breaking down barriers and encouraging open dialogue. Light Up Epilepsy also hosts annual conferences, hackathons, and workshops that bring together patients, caregivers, clinicians, and innovators to co‑create solutions that matter. Through these multi‑disciplinary efforts, the organization remains at the forefront of a global movement toward equity, inclusion, and understanding.